Who are we?
The American Thoracic Outlet Syndrome (TOS) Association is an all volunteer registered 501(c)(3) non profit grass roots organization dedicated to providing reliable information and hope to individuals suffering from Thoracic Outlet Syndrome and other upper extremity neurovascular disorders. Established in 2007 by a patient, ATOSA has already reached thousands of individuals around the world. Our primary mission is to bring hope to a seemingly forgotten patient population suffering from an often extraordinarily painful condition.
Our Mission Goals
Our primary mission is to bring hope to a seemingly forgotten patient population by increasing public awareness and bringing together patients and professionals so that together we can continue to bring Thoracic Outlet Syndrome and other upper extremity neurovascular disorders to the forefront of modern medicine.
Past and Future
Already, ATOSA has made great strides in improving awareness and education. This past October ATOSA along with Washington University School of Medicine, held the first ever Thoracic Outlet Syndrome patient and professional conference. This conference was a great success and brought together many healthcare providers and patients. We've also established a much needed online support group for thousands of individuals around the world and are currently addressing research needs.
The American Thoracic Outlet Syndrome Association is supported by patients, family, friends, volunteers and corporations. Without our supporters we could not exist. We thank each and every supporter for their time and financial support.
After a difficult surgical journey, Gail Sault's journey took a not so good path. When it become quite obvious that there was virtually no TOS awareness and very little help available, Ms. Sault decided that she has had enough and began the process of forming a not for profit TOS advocacy organization. To read more about Ms. Sault struggle please visit Founder's Message.
Our Board of Directors
Our distinguished Board of Directors was strategically developed to include many medical specialties and geographical locations throughout the nation. This was to ensure we maintained a broad spectrum of opinions, experience and most importantly, to facilitate much needed professional communication.
Our Members, Our Membership
ATOSA's primary membership is named the Thoracic Outlet Syndrome Society of Hope which is open to patients, family, friends, and healthcare providers. Our members are wonderful, caring individuals from around the world who share the hope of progress and less pain. Our message board forum is located at myhealthboard.org and named the Thoracic Outlet Syndrome Support Group Network. We've also provided additional gathering places located on Facebook such as Sisterhood of TOS, Men with TOS, TOS Surgical Success, TOS Surgical Complications, Say No to the TOS Shuffle and more. Currently are total membership exceeds two thousand members.
ATOSA is committed to encouraging research into improving the diagnosis and treatment of Thoracic Outlet Syndrome and other upper extremity neurovascular disorders. We are especially interested in research that studies less and non invasive treatment options and the use of 21st century diagnostic testing. The National Institute of Health (NIH) often requires advocacy organizations to be involved in research proposals and to promote professional development and collaboration. ATOSA has provided this by being involved in a past research proposal submitted to the NIH for review and by providing the first ever professional and patient conference. We will continue to work with healthcare professionals in a safe and effective manner to bring forth appropriate collaborative research.
ATOSA is committed to bringing you a non profit Thoracic Outlet Syndrome organization of the highest integrity and devoid of personal and professional agenda while respecting the difficult life circumstances this condition can bring forth. It's not easy living with Thoracic Outlet Syndrome and we totally and absolutely understand this. From the beginning, our Founder's pledge was to bring you hope through collaboration with only those individuals who truly understand what it is like to have this condition and those professionals that respect this multi faceted condition with the utmost of compassion and integrity.